2004 - Media Briefing Pack

Services > Systemic Advocacy > 2004 - Community Care Coalition

Community Care Coaliton

CONTENTS

1. Key Principles
2. Executive Summary
3. Introduction to the NSW Community Care Coalition
4. Overview of Community Care in NSW
5. Fact Sheet - Issues for Carers
6. Fact Sheet - Dementia and Alzheimer's Disease
7. Fact Sheet - Workforce and Volunteer Issues
8. Fact Sheet - Issues for People with a Disability
9. Case Studies
10. What Needs to be Done?
11. Press Releases

1. KEY PRINCIPLES

Community care means caring for older people and those with disabilities in their own homes, providing cleaning services, delivered meals, personal care, nursing and health care and respite care.

The NSW Community Care Coalition believes that

  • older people and people with disabilities should be supported so they are able to remain living in their homes.
  • Community care services should be available where people live.
  • The community care system should support people to navigate transition points between health, residential aged care and disability support services.
  • The community care system should support the role of carers who are often families and friends.
  • The community care system must maximise social capital through supporting volunteers and building communities.
  • Demand for community care exceeds supply and there is a critical need for additional resources.
  • The community care system is overly complex, difficult to navigate and needs to be streamlined.
  • Community care services are choking on excessive administrative and regulatory requirements.

By 2006, more than 1.3 million Australians will have a severe or profound disability, with most preferring to receive care where they chose to live. It is critically important that people continue to have the choice to live at home in their community amongst friends and family, rather than being forced into institutions.

This Community Care Week of Action is a first step towards raising awareness and mobilising public opinion at a local level regarding the importance of community care. Community care is the most economically efficient and socially effective model. It improves people's lives and prevents premature admissions to residential care facilities. It is the way of the future.

2. EXECUTIVE SUMMARY

The importance of the contribution made to the well being and independent living capability of older people and people with a disability by community care in NSW is not well understood in the broader community.

Community care services are in need of substantial additional attention and resources.

The arguments for why community care is important are indeed compelling because today, many more people who need assistance with day to day living receive support at home from community care services than in residential care settings.

Community care is care delivered to older people and people with a disability, in their own home instead of in an institution (otherwise known as residential care). As the name implies, care at home often involves volunteers from the community and carers in addition to paid staff.

Some Key Facts

  • In Australia in 2001, 775,500 older people needed help or had difficulty with a core activity task.
  • In 1998 nearly 2.5 million people aged under 65 had a disability.
  • Of these, 655,000 people needed ongoing assistance with daily living.

However, community care services must be able to support people when and where that support is needed. Failure to provide sufficient support when needed can result in:

  • Deterioration in health and reduced quality of life for older people, people with disabilities
  • Isolation of older people and people with disabilities
  • Carers suffering from stress and poor quality of life
  • Increased costs for governments through increased demand on the public hospital and residential care systems.

For the last two decades, the NSW Government and the Australian Government have pursued policies that encourage caring for people in the community, rather than in hospitals, nursing homes or other institutions.

The community has supported such policies because the majority of Australians needing assistance, prefer to be able to live in their own homes, within their own communities where possible. However, current community care services cannot meet existing demand.

Most services cannot even meet the needs of their existing clients let alone the daily addition of new people who require support.

Some Key Facts

  • 2.5 million Australians are providing care for family or friends with a disability, mental illness, chronic condition or older people. This represents one in every five households.
  • 54% of carers said that they provided care either because alternative care is unavailable or too costly, or because they consider they have no choice.
  • The 1998 ABS Survey of Disability, Ageing and Carers reported that only 40% of people of all ages with a major disability who live independently and need assistance, felt their needs were only partly being met.
  • The average waiting time for Community Aged Care Packages is 18 weeks.

Resourcing, both financial and human, for these rapidly growing needs is falling behind the current demand. Additional resources must be found, along with more effective ways of using current resources.

Community care is funded and administered by Australian & State Governments. Each level of Government has created a range of different community programs and aged and community care services are choking on excessive administrative and regulatory requirements.

Differences in levels of resources exist between regions in NSW especially between metropolitan and rural and remote areas. Access to services should not be dependent on where a person lives. Costs of providing services are often higher in rural and remote areas.

More resources should be directed at providing support such as meals on wheels, domestic assistance and personal care assistance, and less into sometimes complex and burdensome accountability mechanisms.

The level of care provided under these services is embarrassingly inadequate. At least 60,000 older Australians with very high care needs were assessed by Aged Care Assessment Teams in 2001-2002 as needing more care than they were receiving.

Some Key Facts

  • The average amount of domestic assistance received by 45,000 NSW Home and Community Care (HACC) clients last year was just 45 minutes per week - just enough time to help with one load of laundry per week and perhaps a quick vacuum
  • The 15,000 NSW HACC clients receiving personal care received on average just 100 minutes of assistance per week - not even enough time for them to be showered each day.

We as a community tend to rely on the goodwill of the community, families and friends to provide ongoing care often with insufficient financial assistance.

But the community is also ageing. The volunteer workforce is ageing. The paid workforce is ageing. Who will be left to look after those who currently provide care?

What are the Solutions?

In the lead up to the next Federal election, aged and community care providers, carers and consumers from all over the nation are calling on all political parties to commit to addressing the challenge to assist some of our nation's most vulnerable people by:

  • Providing a one off increase of 20% for the Home and Community Care (HACC) program each year for three years
  • Indexing funding realistically
  • Thereafter, increasing HACC funding by at least 6% growth per annum plus indexation
  • Increasing funding for the Assistance with Care and Housing for the Aged (ACHA) program to support homeless older people or those in insecure housing
  • Providing greater recognition of transitional care through extension and mainstreaming of successful pilot programs
  • Reducing cost and burden of administrative red tape
  • Ensuring there is a flexible and growing workforce able to deliver community care services by improving pay for aged care nurses and personal care workers in the community care sector.

3. INTRODUCTION TO COMMUNITY CARE COALITION

What is the Community Care Coalition?

A peak national organisation formed by a significant number of community care providers throughout Australia, with each State having a representative body. Our activities are funded in part by the generosity of the Myer Foundation.

In NSW, our members include

  • ACROD NSW Division
  • Aged and Community Services Association (ACS) NSW & ACT
  • Alzheimer's Australia NSW
  • Australian Association of Gerontology, NSW Division
  • Australian Council of Community Nursing Services
  • Carers NSW
  • Catholic Welfare Australia
  • Catholic Health Australia
  • Council on the Ageing (COTA) NSW
  • Community Transport Organisation
  • Chronic Illness Alliance
  • Council of Social Service of NSW (NCOSS)
  • Ethnic Communities' Council of NSW
  • HACC Development Officers Network of NSW
  • Multicultural Disability Advocacy Association of NSW (MDDA)
  • NSW Community Options
  • NSW Council for Intellectual Disability
  • NSW Mental Health Co-ordinating Council
  • NSW Meals on Wheels Association
  • Paraquad
  • People with Disabilities Australia
  • Physical Disability Council of NSW (PDC)

Our primary aims are

  • to raise awareness about the importance of community care to the diverse range of people who need its services
  • to highlight the implications of the current drastic shortage of funding in community care
  • highlight the need for reform of the community care system to reduce complexity and fragmentation and increase accessibility

What is Community Care?

Community care now and in the future should provide support services that will enable older people, people with disabilities and their carers to stay in their own communities.

  • Most older people and younger people with disabilities who require care prefer to live in their own home.
  • For two decades governments have encouraged living at home instead of moving to residential care.
  • However the community care system in Australia is not meeting all of the needs of Australians who require it. There are inadequate levels of service provision; it is fragmented, services are often difficult to access and are unevenly distributed across the country.

The provision of care by families, friends and by community care services is essential to help people to live in their own homes, but existing funding and programs do not permit such provision to occur effectively.

The attached Fact Sheets outline key issues facing community care in New South Wales.

Why is Community Care Important?

More people receive support at home through community care services, both formal and informal, than in residential care settings. Community care services must be able to support people when and where that support is needed.

Failure to provide sufficient support when needed can result in

  • Deterioration in health, greater isolation and reduced quality of life for older and people with disabilities
  • Increased stress and poor quality of life for carers
  • Increased costs for governments through increased demand on the public hospital and residential care systems.

Key challenges that must be addressed NOW are

  • Ensuring availability and access to support
  • Address funding inadequacies as costs are rising faster than our income
  • Attracting and retaining appropriately skilled staff
  • Reducing excessive, costly and time consuming regulatory and administrative requirements

4.OVERVIEW OF COMMUNITY CARE

Community Care Now

  • The Home and Community Care (HACC) program in NSW provides services for up to 175,000 people. Over 80% of HACC clients in NSW are aged 65 years and over.
  • In NSW and the ACT, a recent survey found more than 20,000 people waiting for residential aged care places and 1,700 waiting for Community Aged Care Packages.
  • 25% of households with people over 65 years report unmet needs (eg. personal care, transport, housework, meals and home maintenance)
  • On average people in NSW receive 3/4 of an hour a week of domestic help and just over 1 ½ hours a week of personal care , but needs are much greater.

Community care is significantly impacted by other government policies and services. For example, initiatives to reduce length of stay in hospitals have resulted in increased demand for in-home community care services to support older people, people with disabilities and their carers without additional resources. Many carers, families and services are required to meet greater responsibilities, including management of more complex care situations and transport to medical treatments and appointments.

People who have more difficulty accessing services include

  • Aboriginal and Torres Strait Islander people
  • People with disabilities
  • People with dementia
  • People from culturally and linguistically diverse backgrounds
  • Older people in rural and remote communities
  • Homeless people

Funding for Community Care

Demand for community care will continue to grow. The Federal Minister's Strategy estimates that, based on current service use patterns, the number of people across all age groups who rely on community care services will rise from approximately 650,000 people in 2002 to nearly 970,000 people in 2019.

Therefore, community care funding must be increased to meet increasing demand. To function effectively, the community care system must be appropriately resourced. Modelling undertaken as part of the Myer Foundation Report suggests that the cost of providing aged care could rise by almost 60% by 2020 .

Funding for community care has increased in recent years, however funding has not been adequately indexed which means that it is actually continuing to fall behind the real cost of providing care. In addition, there are still not enough funds to even meet current demand, let alone the anticipated growth in the coming years. There is a lot that government can do to better ensure ongoing provision of compassionate and appropriate care to Australians in need.

Key issues in Community Care funding

1. restructure and streamline the number of programs and their reporting requirements to ensure maximum effectiveness of already available resources;

2. increase funding to meet growing demand and increasing complexity of consumers' and carers' needs.

Both of these issues must be addressed to make an acceptable level of care available to all people who need support in NSW.

Community Care in the Future

  • By 2006, estimates are that 1.3 million Australians will have a severe or profound disability.
  • Australia's population is ageing - in number terms, people 65 plus will increase from 2.4 million now, to 4.2 million by 2021.

How will a system that already is unable to meet existing demand cope with these significant population increases?

Availability of and access to a proper standard of community care is essential to people choosing to live safely in their own communities and aligns with government policy.

Community care services must be able to respond appropriately to

  • People of Culturally and Linguistically Diverse Backgrounds
  • Aboriginal and Torres Strait Islander People
  • People in rural and remote areas
  • Homeless people
  • People with dementia
  • People with a disability
  • Older people
  • Carers

5. FACT SHEET - ISSUES FOR CARERS IN NSW

(WHO CARES FOR THE CARERS?)

Why are Carers So Important?

  • There are approximately one million carers in NSW.
  • Carers save the NSW economy at least 5.4 billion dollars annually.
  • It has been estimated that 74% of all care needs in the community are provided by carers. Therefore, family carers are the mainstay of the community care and health systems.
  • More than two thirds of carers have provided care for over five years. They do substantially more domestic work than non-carers, as well as providing emotional support.
  • In NSW, 67% of Primary Carers are 45+ years of age. With an ageing population and carers passing retirement age, we are facing a Carers' crisis.

Why do Carers need Support?

  • Carers have lower incomes than the average weekly wage. They also face higher medical and other expenses.
  • The stress and pressures associated with caring can have an adverse impact on many carers' physical, mental and emotional health with heightened incidence of high blood pressure, heart problems and exhaustion.
  • When carers are not adequately supported relationships and families can break down, resulting in more expensive residential care options being used permanently.
  • ABS data shows the number of hours per week that caring tasks consume.

Of all carers aged 15 or over living with the care recipient

  • 17% spend 20-39 hours per week caring; and
  • 44% spend 40+ hours per week caring.

What Kind of Support is Required?

  • More respite support that is accessible both geographically and financially is required to give carers a break whilst ensuring those they care for are safe and well during the respite period.
  • Information services that are easily accessible and up to date are necessary to ensure carers know what services are available and how to use them.
  • Improved income support for carers is vital. Many must manage on around half the average weekly wage, and also often must cover high medical costs.
  • Counselling services are essential to provide emotional and psychological support to carers.

6. FACT SHEET - DEMENTIA AND ALZHEIMER'S

Who cares for People with Dementia and Alzheimer's Disease?

  • In Australia, there are currently 176,000 people with dementia, the majority of which is caused by Alzheimer's disease.
  • Most people with dementia are cared for by family, friends and community care services.
  • More than 80% of people living in residential aged care have dementia but only 6% of residential care places are dementia specific. It must be increased to at least 15% immediately.
  • Australians over 85 years have a one in four chance of developing dementia.
  • It is estimated that up to 20% of Home and Community Care (HACC) clients have dementia.
  • There is a chronic shortage of respite and emergency care facilities for unpaid dedicated carers who are often "on-call" 24/7 with little or no relief.
  • Community and family carers provide 75% of the care required by people with dementia - not institutions.

What does the Future Hold?

  • In just over a decade - by 2016 - dementia will be causing the highest disease weight - ahead of cancer and cardio-vascular disease.
  • It has been estimated that if we can delay the onset of dementia by just 5 years, this will halve the number of sufferers.
  • Yet, there is a dramatically inadequate funding focus on prevention or risk reduction - less than 1% of the total cost of dementia care is spent on research.
  • The number of people aged 65+ is now 12% of the population and by 2050, people aged 65+ will more than double to be more than a quarter of the population. It is this age group that is most likely to develop dementia.

7. FACT SHEET - WORKFORCE AND VOLUNTEER ISSUES

Key Workforce Issues

  • In 2001, there were 237,055 people employed in community services. 87% of workers in community services were female and 51% of these people worked part time.
  • In 2001 nationally there were 1228 people employed in community services per 100,000 of population. NSW is well below the national average with 1,077 people per 100,000 population employed in community services.
  • The community services sector has difficulty in attracting and retaining staff across all levels. A large majority of workers have no formal qualifications.
  • For the same work, wage rates for public hospital employees are significantly higher than employees in the community care sector.
  • Unmet and burgeoning demand for community care contributes to unreasonable workload pressures

Key Volunteer Issues

  • A 2002 survey of Home and Community Care services in NSW found 26,213 volunteers working for 399 services (based on a return rate of 66% of all NSW HACC services excluding State Government services).
  • This represented about 1.8 million hours of volunteer labour per annum in the 399 services.
  • Food services (meals-on-wheels), respite care, transport and social support make up about three quarters of the volunteer hours.
  • Many volunteers working in community care services are ageing.
  • Rates of people volunteering on a regular and ongoing basis are declining. People are volunteering for one-off events rather than on a regular basis. This has a serious impact on community care services that rely heavily on volunteers to deliver services to older people, people with disabilities and their carers in NSW.

Australia as a whole has an ageing workforce. We also have an ageing population. What is the Government's solution to older people and people with disabilities requiring care, and fewer working age people to offer it? Action is required NOW.

With an increasing number of people requiring community care support and a smaller pool from which to draw the workforce, a crisis is unavoidable unless governments act.

  • 57% of all aged and community care workers are older than 45 years of age - higher than the Australian average for all workers. Without government action, the system will be in crisis when these workers are at retirement age themselves.

Working Conditions

  • Personal carers working in the community operate in relative isolation and face additional Occupational Health and Safety challenges as their workplace is an individual's home.
  • The majority of the community care workforce work directly with clients. Despite this, they are relatively lowly paid, work on a part time or casual basis and don't get access to training or formal qualifications.

The impact of low pay, part-time casual employment and the isolation of their work make it difficult to attract, train and retain workers.

Rural and Remote Services

  • Workforce issues are even more acute in rural and remote Australia. Providers have difficulty finding any professional staff, struggle to access professional development or formal training for their staff, and do not have funds to purchase training from far afield.
  • The number of people employed per 100,000 population declines in rural and remote areas, and in most areas is well below the national average.

8. FACT SHEET - ISSUES FOR PEOPLE WITH A DISABILITY IN NSW

KEY ISSUES

  • In 1998, one in five people in NSW (1.2 million people) or 19% of the population have a disability.
  • It has been estimated that 79% of people with disabilities (969,800 people) required assistance in order to live in the community.
  • The proportion of people with disabilities in NSW is increasing. In 1988, 16% of people in NSW had a disability and this has increased to 19% in 1998.
  • People with disabilities are ageing. Between 2000 and 2006, it has been estimated that those aged under 65 years will increase by 9%, those aged 15- 64 by 12% and the group aged 45-64 years will increase by 19.3% to 59,500 people .
  • It is increasingly difficult for people with disabilities to access the community care services they need to live in the community. 87% of people with disabilities in NSW reported that the majority of support is provided by family, friends and partners
  • Inflexible program guidelines and inadequate community care services make it difficult for people with disabilities who are ageing to access the services they need.
  • People with disabilities accessing the Home and Community Care (HACC) program often require a higher level of services to live in their communities. Many people with disabilities have great difficulty in getting services they need particularly personal care services.

9. CASE STUDIES

These case studies are based on actual situations and all names have been changed to protect the privacy of the individuals involved.

The below two case studies demonstrate how many families do want to care for their loved ones but also, how they need support to do this. Mrs Bongiorno would be in residential care without Theresa's unpaid care and the assistance of other services. Young Ben has only been able to continue to cope with the help of the complex nursing care given to him and his mother by home nursing staff. Both these stories highlight the capacity of community care services to support people to remain living independently at home and participating in their local community. This is community care at its best - unfortunately this is not the case for many current consumers and carers as well as those who need support but are unable to access it.

Mrs Bongiorno
  • 83-years old and lives with her unmarried daughter (Theresa).
  • Suffered a major stroke and spent 3 months in hospital
  • The stroke severely affected her speech and balance and relies on tube feeding. Assessed as requiring high-level residential care.
  • Theresa was very keen to care for her at home. The nursing and physiotherapy staff trained Theresa how to care for her mother.
  • Her local doctor visits regularly as does Mrs Bongiorno's married son.
  • Mrs Bongiorno spends most of the day in bed. She has limited speech and high personal care needs.
  • Home nurses come for half an hour, 3 times a week to help with showering and skin care, and home respite care is provided every Tuesday morning.
  • Mrs Bongiorno is on the waiting list for a Community Aged Care Package which would offer funds to buy in additional services. She is worried that it will be months before a "place comes up".

Ben Dobson and his family

  • Nine years old
  • Ben was born with haemophilia, a disease where blood fails to clot - a serious painful illness.
  • Ben and his mother, Leonie, contend with a strict regime of constant medication including frequent injections. Regular visits to hospital were normal.
  • Administering Ben's medication meant Ben would need injections but Mrs Dobson has an overwhelming fear of needles.
  • Nursing care was needed to help with the medication. Andrea, Ben's nurse, had to come three times a week to do it.
  • Andrea has also been educating Mrs Dobson on how to give the injections herself.
  • Now, Ben and his family are becoming more independent each day in managing Ben's care. The family's life and routine is much less dependent on visits from Andrea, or disrupted by the once frequent trips to hospital.
  • "The district nursing service has changed our lives," says a happy and grateful Mrs Dobson. "Andrea's visits and help with the needles have meant that Ben does not have to attend hospital for treatment can do the things he enjoys like playing footy."

The case study below highlights both how much community care is valued by Mr and Mrs Harris and that it is an alternative to residential care. But Mrs Harris, as the primary carer needs much more support from formal services. For example, most Australians would agree that having a shower and shave only twice a week is not enough. And yet this is all Mr Harris can get until another "package of care services" becomes available. Community care service providers are stretched to the limit and rarely have the funds or staffing capacity to immediately provide the range and levels of care they assess are required.

Mr and Mrs Harris
  • Peter is 86 and has dementia and poor balance.
  • The Aged Care Assessment Team assessed him as being suitable for high-level care in a nursing home. Mrs Harris however, was keen to support him at home as she did not want "to put him in a nursing home."
  • Arrangements were made for the local service to send a personal carer twice a week to give Peter a shower and a shave.
  • Mrs Harris says "He can help me a bit with the dishes and in the garden and he likes to play with his dog and take him for a short walk". "The day centre has referred us to another service because Peter is 'too high care' so we are waiting for a package of care services which includes a case manager".
  • Mrs Harris says "But I have no regrets. Peter and I have been married for 59 years and we have been together in this house since 1954. I want us to stay together for as long as I can manage."

Mr Brown's experience of having numerous assessments and changes of service providers is not unusual. Mr Brown's story highlights the lack of integration between these service systems.

As a result of different government funding and the restrictions for individual programs, he has had three different home care providers. This is inefficient, costly and most of all, very upsetting for people using the services.

Mr Brown
  • Mr Bown is 74 and a widower and lives alone in his unit.
  • He is a DVA (Department of Veterans' Affairs) gold cardholder, with a medical history of insulin dependent diabetes and osteoarthritis.
  • The Commonwealth Veterans Home Care program offered him 1 hour of home care per fortnight. They also advise that he should go back to a local Home and Community Care (HACC) service as he is likely to receive higher service levels!
  • HACC staff assess Mr Brown and finally two weeks later, services are implemented.
  • He is very happy to receive 1.5 hours of home care per week including domestic, laundry and shopping assistance. Mr Brown is referred to the DVA Rehabilitation Appliance Program where an Occupational Therapist recommends grab-rails and step modifications for his bathroom and a physiotherapist recommends a walking aid, but then he has to deal with someone else to get the installation done.
  • Then Mr Brown breaks his leg and on discharge from hospital, he receives "Post Acute Care" (funded by the State) which provides home care and personal care.
  • Even though the care provided is the same as his local service provider, he has to receive it from a different organisation because of funding arrangements. This means that instead of knowing the staff well and seeing familiar faces at this very difficult time he has a totally new organisation and staff.
  • After Mr Brown has received the maximum 4 weeks of post-acute care, he returns to the local service for home care.
  • Mr Brown's deteriorating health prompts a review of his care plan resulting in further increases in home and personal care. These increased needs trigger a referral for a Community Aged Care Package (CACP). It is really confusing for Mr Brown which service he should use and there is a 3- 6 month wait for services.
  • The process requires Mr Brown being assessed by the Aged Care Assessment Team. He is subjected to further assessment by each individual agency who might provide the CACP.
  • Months go by before he is accepted for a CACP.
  • However, the agency providing the CACP uses different staff and Mr Bown has yet another change of service provider and care staff at a time when he is most vulnerable.

10. WHAT MUST BE DONE?

In the lead up to the next Federal election, aged and community care providers from all over the nation are calling on all political parties to commit to addressing the challenges service providers face in assisting some of our nation's most vulnerable people.

The issues are clear, the need to address them paramount and the solutions sensible, logical and practical.

The Federal Government must

  • Provide a one off increase of 20% for the Home and Community Care program each year for three years. (Approximate Cost: $50m Federal/$33m State)
  • Thereafter, increase HACC funding by at least 6% growth per annum plus indexation
  • Increase funding for the Assistance with Care and Housing for the Aged (ACHA) program to support homeless older people or those in insecure housing ($3 million approx)
  • Provide greater recognition of transitional care through extension and mainstreaming of successful pilot programs.

To reduce the cost and burden of administrative red tape, State and Australian governments must

  • Introduce one set of standards and reporting requirements for community care programs.
  • Progress community care reform through a detailed implementation plan.

Workforce Adequacy Issues

  • Ensure that there is a flexible and growing workforce able to deliver community care services.
  • Co-ordination of efforts of State, Commonwealth and Industry - leading to the development of an industry wide (aged and community care) workforce plan is urgently required.

The current National Aged Care Workforce Strategy effort needs to be continued and

  • reflect the changing nature of the workforce with less availability of nurses requiring more strategic use of their time
  • deal with community care workforce demands and issues
  • expand the availability of traineeships for personal care workers
  • develop innovative approaches to promoting aged care careers, particularly among young people
  • address a number of, mainly State-based, regulatory barriers to the efficient and flexible deployment of existing staff which inhibit the provision of safe, economical and genuinely person-centred care.

A long term solution (tied to the ongoing funding of services) to improve the pay for aged care nurses and personal care workers in the community care sector must be found.

11. PRESS RELEASES

Government Must Commit to Community Care

In the lead up to the next Federal election, aged and community care providers from all over the nation are calling on all political parties to commit to addressing the challenges providers face in assisting some of our nation's most vulnerable people.

Community care matters. In 2002/2003, 28% of older people aged 70 plus use community care services. Community care is vital to support carers, older and people with disabilities to remain in their communities.

The issues are clear. The need to address them paramount. And the solutions sensible, logical and practical. The Federal Government must

  • Provide a one off increase of 20% for the Home and Community Care program each year for three years. (Approximate Cost: $50m Federal/$33m State)
  • Thereafter, increase HACC funding by at least 6% growth per annum plus indexation
  • Increase funding for the Assistance with Care and Housing (ACHA) program to support homeless older people or those in insecure housing ($3 million approx)
  • Provide greater recognition of transitional care through extension and mainstreaming of successful pilot programs and changes
  • Work with state and territory governments to implement community care reform

Since the early 1990s community care services have experienced costs rising faster than income. Providers have managed the impact of this as best they can by restructuring, cost cutting and improving productivity within the constraints of Government regulation and policy. There is no significant scope for further productivity gains.

Paul Sadler, Chief Executive Officer, Aged and Community Services Association of NSW & ACT said

"Inadequate indexation will continue to be a major problem even if one-off increases are provided. As a result of inadequate indexation methods, the Federal Government has effectively taken $120m funding from Home and Community Care since 1996/97."

No service provider can continue operating if its costs rise faster than its income.

Further information

Gary Moore, Director, Council of Social Services of NSW (NCOSS), ph 02-9211 2599 or 0407 567 408 (m) OR Paul Sadler, Aged and Community Services Association of NSW & ACT (ACS), ph 02-9799 0900 or (m) 0438218003

The NSW Community Care Coalition consists of 22 consumer and service provider peak organisations working across community care in NSW.

Older People and People with Disabilities in NSW are Missing Out

Every day people with disabilities, older people and their carers in NSW miss out on getting the services they need. Demand for community care exceeds supply. The community care system is complex and difficult for people, to navigate.

1 in 5 people (19 % of the population) in NSW have a disability. There are 1 million carers who save the NSW economy an estimated 5.4 billion dollars annually. In 1998, 25% of older people aged 65 plus reported there needs were not being met.

In the lead up to the Federal election, the NSW Community Care Coalition calls on all political parties to increase funding for community care services. The Federal government must work with state and territory governments to make the system easier to navigate.

The buck-passing between State and Federal Governments must stop about who will deliver services and who will fund it. "The complexity and inaccessibility of many services to those in need increases cost and inefficiencies in these critical services", said Gary Moore, Director, Council of Social Service of NSW (NCOSS).

"Because of the manner in which community care programs for older people and people with a disability and their carers are structured and funded, community care workers are every day put in the position of having to decide that one person in need just isn't desperate enough yet. No individual should be put in that position".

For further information contact

Gary Moore, Director, Council of Social Services of NSW (NCOSS), ph 02-9211 2599 or 0407 567 408 (m)

Paul Sadler, Aged and Community Services Association of NSW & ACT (ACS) Ph: 02-9799 0900 (m) 0438 218 003

The NSW Community Care Coalition consists of 22 consumer and service provider peak organisations working across community care in NSW.

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